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Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted.
The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit cc.nih.gov.
Updates regarding government operating status and resumption of normal operations can be found at OPM.gov.

VHL Alliance

The VHL Alliance (VHLA) is a 501c3 non-profit organization founded in 1993 by three families with VHL to share experiences, learn from one another, support one another, and help the doctors understand and treat VHL, and improve life for patients. Today, the VHL Alliance is the preeminent resource and clearinghouse of patients, caregivers, researchers, and the medical community. VHLA is connected with approximately 90% of all diagnosed VHL patients throughout the world.

Mission

The VHL Alliance (VHLA) is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.

1208 VFW Parkway, Suite 303
Boston, Massachusetts http://www.vhl.org
617-277-5667

Last updated: October 23, 2019