National Organization for Albinism and Hypopigmentation

NOAH provides information and support regarding albinism and related conditions, promotes public and professional education about these conditions, encourages research and funding that will lead to improved diagnosis and management of albinism, and provides networking for those with special interests related to albinism such as minority groups and Hermansky-Pudlak Syndrome. NOAH provides information and support for its members by sponsoring workshops and conferences on albinism; publishing a quarterly magazine, Albinism InSight; publishing information bulletins on topics specific to living with albinism; provides a network of local chapters and contact people; provides a web site that has information about albinism and bulletin boards where people can share experiences; spreads knowledge about albinism and works to improve attitudes towards those with the condition through television appearances, newspaper articles, information packets for libraries, and outreach to professionals; networks with support groups for people with albinism in other countries; and promotes development of albinism support groups throughout the world through participation in the Albinism World Alliance.